Today Mason had the barium enema. He could not eat for 4 hours prior to the procedure, and by the time he finally got to eat it had been 5.5 hours!!! Definitely felt for my little man...he usually only makes it 2-2.5 hours in the morning between feeds...so this was a stretch for him!!
Overall, the procedure went well....as well, as it could go. Mason looked soooo tiny as he lay naked on the x-ray table. At first he was happy and waving his arms and kicking his legs while the dr and nurses got everything ready.
When it began, the radiologist took lots of pictures while the barium was entering his body. I could look over at the screen and see Mason's colon and watch as the barium was traveling through. Technology is AMAZING! Naturally, Mason was not exactly happy about everything...but he actually calmed down at one point. He was sucking on the pacifier soooo hard. I think he thought that if he just kept at it...some milk would trickle out. And 30 minutes later, it was done. The nurses were in love with him and wanted to help dress him. Each got to put on a sock :)
The radiologist told me he would read the films today and send a report over to the pediatrician and I should hear from the dr by tomorrow.
5:30pm the doctor calls. The actual doctor and immediately my heart sank.
A) the doctor is on the phone
B) she is calling today
The two radiologists that read the films believe Mason has a mild case of
Hirschsprungs’s Disease. I won’t go into details about it, because honestly the only information we know is from google. However, our next step is to meet with a pediatric surgeon next Tuesday (October 26) at 11:15am. This surgeon will also review Mason’s x-rays and
if he has the same conclusion as the radiologist he
could request a biopsy. The biopsy would confirm
if there are dead nerve cells in Mason’s large intestine.
If there is, the only way to fix this problem is through surgery.
boo hoo.
Obviously this information is all really new and we have a lot of questions and lots of unknowns. We are skeptical about everything, as when we look up the symptoms, the only one Mason has is the constipation. However, we are not doctors and we haven’t seen Mason’s x-rays. Of course, we’ll update after our appointment next week.